Keyword Analysis & Research: rarediseases info nih

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rarediseases info nih1.130.463566321
rarediseases1.690.145353612
info1.660.24103174
nih1.190.78262743

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  • Home - Genetic and Rare Diseases Information Center

    nih.gov

    https://rarediseases.info.nih.gov/

    WebFind or understand information about a rare disease. Navigate information throughout the diagnostic journey. Discover resources, disease experts, or clinical studies for a rare disease.

    DA: 27 PA: 65 MOZ Rank: 87

  • Diseases - Genetic and Rare Diseases Information Center

    nih.gov

    https://rarediseases.info.nih.gov/diseases/

    WebExplore GARD's list of rare diseases. Filter by category or search by disease name, acronym, or synonym. Rare diseases found on GARD should not be used as policy statements of NCATS or the NIH.

    DA: 81 PA: 25 MOZ Rank: 23

  • About - Genetic and Rare Diseases Information Center

    nih.gov

    https://rarediseases.info.nih.gov/about/

    WebLearn about the Genetic and Rare Diseases Information Center, the GARD website and its policies, and how to access data used on the GARD website. Registration for this year's Rare Disease Day at NIH is now open!

    DA: 94 PA: 82 MOZ Rank: 45

  • Contact Us - Genetic and Rare Diseases Information Center

    nih.gov

    https://rarediseases.info.nih.gov/contact/

    WebUse the phone number or other contact options to ask a rare disease information specialist a question or provide feedback to the Genetic and Rare Diseases Information Center.

    DA: 26 PA: 16 MOZ Rank: 66

  • Communicating About Rare Diseases - National Institutes of Health (NIH)

    nih.gov

    https://www.nih.gov/about-nih/what-we-do/science-health-public-trust/perspectives/communicating-about-rare-diseases

    WebFeb 28, 2024 · NIH is taking a similar approach for rare diseases—that is, individually they are rare, but collectively they are common. By studying what is common across rare diseases, we can maximize research approaches for more than one disease at a time. So how can you help?

    DA: 57 PA: 97 MOZ Rank: 24

  • Genetic and Rare Diseases Information Center - National Human …

    genome.gov

    https://www.genome.gov/For-Patients-and-Families/Genetic-and-Rare-Diseases-Information-Center

    WebMay 18, 2018 · Overview. The Genetic and Rare Diseases Information Center (GARD) was created in 2002 by the National Human Genome Research Institute (NHGRI) and the Office of Rare Diseases Research (ORDR) - two agencies at the National Institutes of Health (NIH). GARD provides immediate, virtually round-the-clock access to experienced …

    DA: 81 PA: 94 MOZ Rank: 93

  • Rare Diseases | National Institutes of Health (NIH)

    nih.gov

    https://www.nih.gov/about-nih/what-we-do/nih-turning-discovery-into-health/promise-precision-medicine/rare-diseases

    WebNov 16, 2023 · This page last reviewed on November 16, 2023. Rare diseases were once considered medical curiosities with little public-health impact. But though such diseases are individually rare, collectively an estimated 25 to 30 million Americans are affected.

    DA: 92 PA: 24 MOZ Rank: 42

  • Genetic and Rare Diseases (GARD) Information Center

    nih.gov

    https://ncats.nih.gov/research/research-resources/gard

    Web6 days ago · We oversee this NIH-wide grant program that supports medical research on over 200 rare diseases through clinical studies, including collaborations, study enrollment and data sharing. Last updated on April 19, 2024. GARD offers free access to reliable information for individuals and families affected by rare diseases.

    DA: 61 PA: 8 MOZ Rank: 37

  • National Organization for Rare Disorders (NORD) | NIDCD

    nih.gov

    https://www.nidcd.nih.gov/directory/national-organization-rare-disorders-nord

    WebJune 23, 2020. The National Organization for Rare Disorders (NORD) is a nonprofit voluntary health agency that serves as a clearinghouse for information on rare disorders. A rare disorder is a disease or condition that affects fewer than 200,000 Americans.

    DA: 60 PA: 32 MOZ Rank: 62

  • NIH study suggests people with rare diseases face significantly higher

    nih.gov

    https://www.nih.gov/news-events/news-releases/nih-study-suggests-people-rare-diseases-face-significantly-higher-health-care-costs

    WebFriday, October 22, 2021. NIH study suggests people with rare diseases face significantly higher health care costs. A new, retrospective study of medical and insurance records indicates health care costs for people with a rare disease have been underestimated and are three to five times greater than the costs for people without a rare disease.

    DA: 46 PA: 2 MOZ Rank: 77